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Review: Every Heart a Doorway

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Every Heart a Doorway
Every Heart a Doorway by Seanan McGuire
My rating: 4 of 5 stars

There’s no way I can review this objectively because it hit me in such a deep place. This story is so very Seanan McGuire; it reminded me of her song Wicked Girls Saving Themselves.

I’ve always wanted to go through a magical doorway to a place that was just right for me. Haven’t you? What if you did, and what if you had to leave and come back to this world? Would you ever stop trying to return?

1 star off because I felt the whodunnit was a little easy to figure out, but basically I smiled the entire time I read this book so it’s a winner with me.

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Written by tldegray

April 9, 2016 at 11:21 am

Posted in Uncategorized

Weekly Reading Meme

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What I’ve just finished
The Paladin Caper (Rogues of the Republic #3) by Patrick Weekes [ARC]
Alpha Unleashed (Alpha Girl #5) by Aileen Erin [ARC]
Both of these books were ending books (though the Alpha Girl world will go on, I believe) and both wrapped things up very well. The Paladin Caper, especially, tied up things that had been in play since book 1. (Longer reviews will be on Goodreads when I have the spoons.)

What I’m reading now
Fool’s Quest (The Fitz & The Fool #2) by Robin Hobb: I love this series. I smile while I read it, I think the writing is gorgeous. I’ll be lost in this to the exclusion of all else until I’m done.

What I’m planning to read next
Reap the Wind (Cassandra Palmer #7) by Karen Chance [ARC]: I’ve been with this series from the beginning and I’m in it for the long haul. I don’t love the vampire stuff, but I like Cassie and Pritkin, so this book should be good.
How to Live Well with Chronic Pain and Illness by Toni Bernhard: Toni is pretty well known in the chronic illness community. I like her blog, I’m excited to check out her book.

[ARC: I received these books free from NetGalley in exchange for unbiased reviews.]

Written by tldegray

September 17, 2015 at 2:50 pm

Posted in Uncategorized

Spoonie Showers

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Showers are great, am I right? The perfect temperature of water streaming down on you, soothing sore muscles, waking you up, getting you ready to face the day. You can sing in the shower; you can cry in the shower. You can use the plainest of soaps or as many scents as you like. Showers are absolutely great.

You know what sucks? Being certain kinds of chronically ill or disabled and losing that total shower greatness.

Today I went into the shower full of energy and feeling marvelous. I use a mint shampoo (Dr. Bronners 18-in-1 Hemp Peppermint, natch) and I love the scent of it. Couple that with a super-scrubby oatmeal soap and my showers should be wonderful.

I left the shower with my left hand and forearm numb. Both my hands are trembling. My torso is aching, especially around my hips. My thigh muscles are painful and fatigued, and it’s hard to stand. I leaned on things in order to dry off and get dressed, then I collapsed onto the couch where I’ve been for an hour now. If today goes as any other day has gone, I’ve used all my day’s energy taking this shower.

Bear in mind, this was a day when I could take a shower. I had the energy to stand in it, without using my shower stool. I had the ability to lift my arms and wash my hair, something that doesn’t always happen. I was able to get up long enough to actually shower, also something that doesn’t always happen.

This is one of the little things that sucks about being a spoonie. What should be simple turns into a huge production that instead of getting me ready to face the day sends me back to bed.

Written by tldegray

January 31, 2013 at 4:11 pm

And so the conversation turned.

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If you are singing “Fascination” right now, you’re welcome. And if you weren’t until I said as much you’re doubly welcome.

Being chronically ill and disabled, the majority of my conversations are written. They take place online and generally they allow for more time between responses than verbal conversation. But conversations do go on, whether or not you’re participating in them, and they do come to a natural end.

This is why my friends and I have an unwritten rule of email that you respond whenever you are able and that the conversation goes on hold in between responses. It’s less a rule of conversation and more an understanding of each other’s lives and needs. And it’s freeing and so wonderful.

What frustrates me is when illness forces me to leave a conversation. Often by the time I’m able to get back to it, it has run it’s course and is over. It would be silly, sometimes even rude, to step in and try to begin it again. I’m not talking about casual conversations about, say, breakfast and cat memes. I’m talking about political discussions, issues of social justice, things that, to me, are Important with a capital I.

Sometimes I solve this problem by not entering the discussion at all, but, let’s be honest, not talking and not discussing Important issues is not a thing I’m truly capable of doing. Sometimes instead of discussing the issue I take it to my blog and write what I feel. It’s great, don’t get me wrong, I love blogging, but it loses the give-and-take and exchange of ideas you can get from a discussion. So most times I just plain try. I gamble that I’ll be well for as long as the conversation lasts and I jump in. Sometimes I fail but sometimes I succeed and those times are great.

Written by tldegray

January 30, 2013 at 8:43 am

Posted in Uncategorized

Stop calling disabled people inspirational!

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Oscar Pistorius is awesome. Amazing. He’s so fast. There are a lot of complimentary things you could say about him. But whatever you do, please don’t call him inspirational.

When you’re an able-bodied person and you refer to a disabled person as inspirational what you’re doing is using that person to put your own life into perspective. You’re saying to yourself, things could be worse, I could be him. Is that what you want to say about Oscar Pistorius’ achievements?

Read More:
I am not your inspiration.
The ONLY disability in life is WHAT?

Written by tldegray

August 6, 2012 at 5:36 pm

Posted in Uncategorized

Call for Papers: Disabled Mothers

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Co-editors: Gloria Filax and Dena Taylor

Publication Date: 2014

DEADLINE FOR ABSTRACTS: DECEMBER 31, 2011!

Read the rest of this entry »

Written by tldegray

October 3, 2011 at 3:12 am

Posted in Uncategorized

Post-pain med pain scale.

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This pain scale was created by Paula on the ‘Clouds’ message board.

Please note: This is the pain level that is experienced AFTER taking the daily medication prescribed by your doctor.

0 Pain free.

1 Very minor annoyance – mild aches to some parts of the body. No pain medication needed.

2 Minor annoyance- dull aches to some parts of the body. No pain medication needed.

3 Annoying enough to be distracting. Over-the-counter pain relievers (such as Naproxen or topical treatments such as Arthritis Pain relieving rubs) take care of it.

4 Can be ignored if you are really involved in your work, but still distracting. Over-the-counter pain relievers remove pain for 3-4 hours.

5 Can’t be ignored for more than 30 minutes. Over-the-counter pain relievers help somewhat (bring pain level from 5 to a 3 or 4) with pain for 3-4 hours.

6 Can’t be ignored for any length of time but you can still go to work and participate in social activities. Stronger painkillers (such as Ultram) relieve pain for 3-4 hours.

7 Makes it difficult to concentrate, interferes with sleep. You can still function with effort. Stronger painkillers (such as Ultram) are only partially effective. (Stronger pain killers bring pain from a 7 to a 4-6 level.)

8 Physical activity severely limited. You can read and converse with effort. Stronger painkillers (such as Ultram) are not effective. (Narcotic painkillers do bring this pain down to a level 3 or lower level.)

9 Non functional for all practical purposes. Cannot concentrate. Physical activity halted. Panic sets in. (Narcotic painkillers bring the pain level down from 9 to the 4-6 level.)

10 Totally non-functional. Unable to speak. Crying out or moaning uncontrollably – near delirium.

Written by tldegray

July 15, 2011 at 3:30 pm

Posted in Chronic Pain, Health, Uncategorized

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