She's a character, she has opinions.

My illness may be invisible but I’m not!

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Sandy at FightingFatigue.org posts about the invisibility of ME/CFS & Fibro.

How many other illnesses do people have to explain why they:

  • can’t work at all or work very few hours?
  • can’t work more than 2 – 3 days in a row?
  • can’t handle stress?
  • can’t exercise at aerobic levels or can’t exercise at all?
  • can’t get out of bed one day but the next day might be able to work?
  • can’t do more than take a shower or wash their hair before collapsing?
  • will collapse after light exertion? 
  • live with constant, excruciating pain?

It is only with invisible illnesses like CFS, Fibromyalgia and related diseases that we have to go through all of this crap with society, doctors, employers, friends, families, and everyone over and over again. … We don’t have anything to be ashamed about and there is no shame in telling someone you have ME/CFS or Fibromyalgia.  They are REAL illnesses that affect millions of REAL people everyday.  I know that people are sometimes afraid to mention what is wrong with them and I used to be like that because I would worry about what people would think.  But I don’t feel like that anymore.  Knowledge is power and the only way people are going to learn about us is from our stories.

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Written by tldegray

December 20, 2010 at 11:16 pm

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